Rare families are the heart of ANGEL AID and telling their stories is our great honor.
For Rare Mothers, there is nothing more comforting, validating, and empowering than to witness someone living with their same or similar unimaginable realities of long-term caregiving for their loved one.
The Voice of the Rare Mother documentary film series was born out of this belief - that we can bring relief through storytelling.
ANGEL AID sources research, relief and inspiration for families of children diagnosed with a rare disease.
1 in 10 American families are caring for a child with a rare disease....diseases like Cystic Fibrosis, Tay Sachs, Sickle Cell, Hunters Syndrome - 7000 'rare diseases' with no cures.
Our services are available globally to families in the rare disease community through online crisis support groups, restorative wellness retreats and wellness training focused on sustainable caregiving.
Every woman should have access to the training needed to help sustain her own emotional, social, financial and physical health throughout her family’s life-altering journey with rare disease.